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A SERVICE OF OHIO'S PUBLIC BROADCASTING STATIONS
A SERVICE OF OHIO'S PUBLIC BROADCASTING STATIONS
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Press Conference - Introducing Legislation Creating a Rare Disease Advisory Council
State Reps. Randi Clites (D-Ravenna) and Tim Ginter (R-Salem) introduce legislation that will create the Ohio Rare Disease Advisory Council. This bipartisan legislation would provide the expertise that lawmakers need to solve issues facing those living with a rare disease by bringing together key stakeholders like medical researchers, physicians, nurses, patients living with a rare disease, lawmakers, and the administration.
Speakers include:
State Rep. Randi Clites (D-Ravenna)
State Rep. Tim Ginter (R-Salem)
Charlene York- National Organization for Rare Disorders- Ohio Rare Action Network
Kelly Maynard- Little Hercules Foundation
Speakers include:
State Rep. Randi Clites (D-Ravenna)
State Rep. Tim Ginter (R-Salem)
Charlene York- National Organization for Rare Disorders- Ohio Rare Action Network
Kelly Maynard- Little Hercules Foundation
November 13, 2019